{"id":159825,"date":"2025-07-31T16:22:43","date_gmt":"2025-07-31T14:22:43","guid":{"rendered":"https:\/\/cesie.org\/?p=159825"},"modified":"2025-10-13T16:46:09","modified_gmt":"2025-10-13T14:46:09","slug":"educationalaidkits-support-kits-in-the-field-of-rare-diseases","status":"publish","type":"post","link":"https:\/\/cesie.org\/en\/higher-education-and-research\/educationalaidkits-support-kits-in-the-field-of-rare-diseases\/","title":{"rendered":"Educational support kits in the field of rare diseases: bringing the reality of rare diseases to the VET field"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">The Educational Kits consortium is in the final, exciting phase of its work! Our team is busy preparing the final resources and organizing events to share our results with the public. Here\u2019s a summary of our progress and what you can expect in the coming months.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">We are developing a comprehensive set of practical tools for Vocational Education and Training (VET) programs. These resources are designed to better equip students for careers in healthcare and social work, with a focus on inclusivity.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">A Practical Toolkit: Partner organizations are creating a hands-on guide (approximately 25 pages) filled with checklists, visual guides, and step-by-step emergency protocols. This resource will help students apply their knowledge in real-world environments and will include activities for peer collaboration and expert input.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">An Interactive Online Course: A standalone course is being developed to educate teachers and students on a variety of important topics. The curriculum will cover:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>The background and impact of specific health-related challenges.<\/li>\n\n\n\n<li>The importance of professional training and related labour market opportunities.<\/li>\n\n\n\n<li>How to effectively use our practical toolkit in classrooms.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">This course will be interactive, featuring quizzes and forms to enhance the learning experience.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Join Us at Our Multiplier Events!<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This summer, we will host a series of public events across Europe to present the project's final results. Our goal is to reach over 200 participants, including teachers, students, and professionals. We encourage teachers and students from all disciplines to attend!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The consortium looks forward to sharing these final resources with you soon. Stay tuned for more updates and details on how to participate in our events!<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">About the project<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/cesie.org\/en\/project\/educationalaidkits\/\" data-wpel-link=\"internal\">Educational Support Kits in the Field of Rare Diseases: Bringing the Reality of Rare Diseases to the VET Field<\/a>&nbsp;is a project funded by ERASMUS+, European Commission.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Partners<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.fundacionisabelgemio.com\/\" target=\"_blank\" rel=\"noreferrer noopener external\" data-wpel-link=\"external\">Fundaci\u00f3n Isabel Gemio<\/a>\u00a0(Spain, coordinator)<\/li>\n\n\n\n<li><a href=\"https:\/\/www.asem-esp.org\/\" target=\"_blank\" rel=\"noreferrer noopener external\" data-wpel-link=\"external\">Federaci\u00f3n Espa\u00f1ola de Enfermedades Neuromusculares<\/a>\u00a0(Spain)<\/li>\n\n\n\n<li><a href=\"https:\/\/www.cmt-france.org\/\" target=\"_blank\" rel=\"noreferrer noopener external\" data-wpel-link=\"external\">Association Charcot-Marie-Tooth et neuropathies p\u00e9ripheriques<\/a>\u00a0(France)<\/li>\n\n\n\n<li><a href=\"https:\/\/www.uevora.pt\/\" target=\"_blank\" rel=\"noreferrer noopener external\" data-wpel-link=\"external\">Universidades de \u00c9vora<\/a>\u00a0(Portugal)\u00a0<\/li>\n\n\n\n<li><a href=\"https:\/\/rijetke-bolesti.com\/\" target=\"_blank\" rel=\"noreferrer noopener external\" data-wpel-link=\"external\">Hrvatski Rvatski Savez Za Rijetke Bolesti<\/a>\u00a0(Croatia)<\/li>\n\n\n\n<li><a href=\"https:\/\/cesie.org\/en\/units\/research\/\" data-wpel-link=\"internal\">CESIE ETS<\/a>\u00a0(Italy)<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\">For further information<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Leggi la&nbsp;<a href=\"https:\/\/cesie.org\/en\/project\/educationalaidkits\/\" data-wpel-link=\"internal\">scheda progetto<\/a>.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Contatta Ritti Soncco:&nbsp;<a href=\"mailto:ritti.soncco@cesie.org\">ritti.soncco@cesie.org<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>The Educational Kits consortium is in the final, exciting phase of its work! Our team is busy preparing the final resources and organizing events to share our results with the public. Here\u2019s a summary of our progress and what you can expect in the coming months.<\/p>\n","protected":false},"author":19,"featured_media":159823,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[26443,26915],"tags":[45611],"unita":[],"class_list":["post-159825","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-higher-education-and-research","category-news","tag-educationalaidkits"],"acf":[],"aioseo_notices":[],"aioseo_head":"\n\t\t<!-- All in One SEO Pro 4.9.9 - aioseo.com -->\n\t<meta name=\"description\" content=\"The Educational Kits consortium is in the final, exciting phase of its work! Our team is busy preparing the final resources and organizing events to share our results with the public. 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Here\u2019s a summary of our progress and what you can expect in the coming months.","twitter:creator":"@cesie_ets","twitter:image":"https:\/\/cesie.org\/media\/educationalaidkits-supporto-didattico-malattie-rare-ifp.png"},"aioseo_meta_data":{"post_id":"159825","title":null,"description":null,"keywords":null,"keyphrases":{"focus":{"keyphrase":"","score":0,"analysis":{"keyphraseInTitle":{"score":0,"maxScore":9,"error":1}}},"additional":[]},"primary_term":{"category":26443},"canonical_url":null,"og_title":null,"og_description":null,"og_object_type":"default","og_image_type":"default","og_image_url":null,"og_image_width":null,"og_image_height":null,"og_image_custom_url":null,"og_image_custom_fields":null,"og_video":"","og_custom_url":null,"og_article_section":null,"og_article_tags":null,"twitter_use_og":false,"twitter_card":"default","twitter_image_type":"default","twitter_image_url":null,"twitter_image_custom_url":null,"twitter_image_custom_fields":null,"twitter_title":null,"twitter_description":null,"schema":{"blockGraphs":[],"customGraphs":[],"default":{"data":{"Article":[],"Course":[],"Dataset":[],"FAQPage":[],"Movie":[],"Person":[],"Product":[],"ProductReview":[],"Car":[],"Recipe":[],"Service":[],"SoftwareApplication":[],"WebPage":[]},"graphName":"BlogPosting","isEnabled":true},"graphs":[]},"schema_type":"default","schema_type_options":null,"pillar_content":false,"robots_default":true,"robots_noindex":false,"robots_noarchive":false,"robots_nosnippet":false,"robots_nofollow":false,"robots_noimageindex":false,"robots_noodp":false,"robots_notranslate":false,"robots_max_snippet":"-1","robots_max_videopreview":"-1","robots_max_imagepreview":"large","priority":null,"frequency":"default","local_seo":null,"limit_modified_date":false,"created":"2025-10-13 14:40:51","updated":"2026-08-20 02:24:36","ai":null,"breadcrumb_settings":null,"seo_analyzer_scan_date":"2026-08-20 02:24:36"},"aioseo_breadcrumb":"<div class=\"aioseo-breadcrumbs\"><span class=\"aioseo-breadcrumb\">\n\t<a href=\"https:\/\/cesie.org\/en\/\" title=\"Home\">Home<\/a>\n<\/span><span class=\"aioseo-breadcrumb-separator\">&raquo;<\/span><span class=\"aioseo-breadcrumb\">\n\t<a href=\"https:\/\/cesie.org\/en\/sezioni\/higher-education-and-research\/\" title=\"Higher Education and Research\">Higher Education and Research<\/a>\n<\/span><span class=\"aioseo-breadcrumb-separator\">&raquo;<\/span><span class=\"aioseo-breadcrumb\">\n\tEducational support kits in the field of rare diseases: bringing the reality of rare diseases to the VET field\n<\/span><\/div>","aioseo_breadcrumb_json":[{"label":"Home","link":"https:\/\/cesie.org\/en\/"},{"label":"Higher Education and Research","link":"https:\/\/cesie.org\/en\/sezioni\/higher-education-and-research\/"},{"label":"Educational support kits in the field of rare diseases: bringing the reality of rare diseases to the VET field","link":"https:\/\/cesie.org\/en\/higher-education-and-research\/educationalaidkits-support-kits-in-the-field-of-rare-diseases\/"}],"_links":{"self":[{"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/posts\/159825","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/users\/19"}],"replies":[{"embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/comments?post=159825"}],"version-history":[{"count":4,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/posts\/159825\/revisions"}],"predecessor-version":[{"id":159831,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/posts\/159825\/revisions\/159831"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/media\/159823"}],"wp:attachment":[{"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/media?parent=159825"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/categories?post=159825"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/tags?post=159825"},{"taxonomy":"unita","embeddable":true,"href":"https:\/\/cesie.org\/en\/wp-json\/wp\/v2\/unita?post=159825"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}